Got medicine organizer since it is difficult to remember when and what I need to take.
Echocardiography 2 weeks after discharge.
it seems like I need to get surgery in a few weeks. Things go faster than I plan nowadays.
Drawings from March 3rd, 2000.
March 3rd, 2000, I have asked my students, 2-4 years old, if I could keep all of their drawings and they said ok. Thank you guys! These are my treasures. I was expecting my first and last child birth with in a month. I talked about how much my baby boy was active and lived in my stomach, how baby got nutrition from mom etc.
This took pace at the art class in Japanese at the Children’s Museum of the Arts in Soho, New York, moved to West Village in 2014. I have taught at the Museum from 1991-2015. Thank you, Kathleen Schneider, Fonder of the museum, for giving me great teaching opportunities who is quite new in USA.
2000年3月3日、当時ソーホーに有ったチルドレンズ・ミュージーアム・オブ・ジ・アーツで教えていた日本語アートクラスの子供達に私のお腹の中に赤ちゃんがいて、お医者さんに行ったら『大きなオチンチンの男の子』と言われた事、とっても元気でいつもお腹の中で暴れている事、お母さんが食べたご飯はおへそ同士を繋ぐコードから赤ちゃんに行く事等、たくさん話しその絵を描いてみました。今でも、この絵は私とお腹の中の息子を一緒に見ることの出来る素晴らしい宝物です。皆、ありがとう!
By Naokazu
by Sara (?)
By Akira Tsurumoto
By Yusuke
By Hanako
By ?
By Mina
Ready to leave cardiology ICU
More than 700cc of water was removed from my heart and my such wonderful cardiology icu team made me ready to go back to oncology floor , As soon as a bed open up there. I would love to go back to oncology since that is my home ground and love to know more about what is really going on in me :)
Karaage & rice ball lunch box! Gave me lots of energy!!!!!!!!
Finally, much better. Thank you my body!!! Once I thought I may die this time.
HOSPITALIZED
I came ER, and got a bed at oncology floor and now moved to ICU at cardiology. 360cc was removed first, additional 200cc, 100cc and more was drained. The color has changed from blight red with some clots, to clear yellow. It seems very dangerous situation. It was extremely painful the night of the procedure. Water seems almost stopped. Ultra sound will be performed tomorrow to confirm developing water was ended at least this time. What is going on me?
Earlier water was blight red .
am i ok?
私、大丈夫か?
Done with two months of Prednisone!
I hated this steroid, Prednisone, that made me very sick with side effects. I completed to take the last one pill today. No more. この2ヶ月、ステロイド剤の副作用で体調最悪でした。(噂には聞いていたけれど)やっと、今日、最後の1錠が飲み終わった。もう、2度と目の前に現れるな。
Harvesting left overs from my fall farming by the window.
Trying to be ready for spring farming by mixing boiled soy beans to recycle soil, which my old friend organic farmer suggested. Will try to harvest as mush as possible for my daily life. 秋野菜の残りを収穫、春の窓際農園の準備を始める。土リサイクルの為に、茹で大豆を土に混ぜてみた。古い友人鹿児島の有機農場古澤さん、いつも色々教えてくれて有難う!今年も出来るだけの自給自足目指す。
Corn salad, daikon, beets from left.
How could this side hole be made? My usual enemy squirrel? こんな横穴なぜ出来る? いつもの敵、りす?
With moon face and nail infection but I am feeling much better after a month and a half.
Needed to stop taking Tagrisso though it was working amazingly its chore but brought me pneumonitis. As soon as I started to take heavy dose of steroid to treat pneumonitis, I felt sick badly. My oncologist’s second choice, Tarceva, should do well in me. I have great appetite and enjoy cooking and eating everyday. Grocery’s home delivery service and some of my friends help ( Thank you so so much!) make it possible. I am enjoying slower life. Well, no choice but i like it : )
My favorite bathroom : )
高濃度ステロイドの副作用で、12月からの1月半以上、ムーンフェイス、爪周り炎症、バッファロー肩、抜け毛、怠さ、やる気が出ない。散々でした。肺癌の自覚症状は、ほとんど無いので、辛いのは薬の副作用ばかりで、『あれ?私の病気ってなんだっけ?』って感じ。新しい薬(タルセバ)が効きますように。 幸運にも食欲はあるので、宅配サービスや、友人の手を借り(ありがとう!)食材を手に入れ、料理を楽しんでいます。長い事、作家業、先生業、親業にどれだけの労力と時間を費やしていたか。病気しなければ、こんな時間は経験出来ていなかった。人生皮肉なもんだ。がん治療というのは、治療と副作用と折り合いをつけながらその人に合う方法を見つける事みたい。
Come to see me at the site on Friday 27th. 1-3pm Second floor staircase
Installation “Dwelling - egfr mutation” : egfr突然変異の棲家
I repurpose found objects such as used clothes, junk mail, discarded gum on the street as art supplies. Most recently, I have started to use the tools and processes that I have developed to consciously work with tumors since my diagnosis of stage 4 lung cancer. The tumors have become another art material in my life. I'm not fighting against the tumors; I am relating to them as a radical act in life of acceptance and creativity.
Till Dec. 29 Fri-Sun noon-5pm.
At Williamsburg Art and Historical Center, 153 Broadway, Brooklyn. Entrance is on Bedford Ave. 5min. walk from Marcy Ave station(M train)
My art is my own, and this posting is not in cooperation with the venue but of own doing.
#installation #windows #dwelling #staircase #niizekihiromi #contemporaryart #williamsburg #brooklyn #broadway #nyc #EGFRmutation #fucklungcancer #fuckstage4 #adenocarcinoma #pantsudansu #dancedance #danceitout
A little better way of living.
See me at the site on Friday 27th. 1-3pm Second floor staircase
Installation “Dwelling - egfr mutation” : egfr突然変異の棲家
I repurpose found objects such as used clothes, junk mail, discarded gum on the street as art supplies. Most recently, I have started to use the tools and processes that I have developed to consciously work with tumors since my diagnosis of stage 4 lung cancer. The tumors have become another art material in my life. I'm not fighting against the tumors; I am relating to them as a radical act in life of acceptance and creativity.
Till Dec. 29 Fri-Sun noon-5pm.
At Williamsburg Art and Historical Center, 153 Broadway, Brooklyn. Entrance is on Bedford Ave. 5min. walk from Marcy Ave station(M train)
My art is my own, and this posting is not in cooperation with the venue but of own doing.
#installation #windows #dwelling #staircase #niizekihiromi #contemporaryart #williamsburg #brooklyn #broadway #nyc #EGFRmutation #fucklungcancer #fuckstage4 #adenocarcinoma #pantsudansu #dancedance #danceitout
“Not Entirely Safe”, Claire Langevin Vinyard, Napanoch, NY.
After waited for it a full year on my kitchen/living shelf, definitely enjoyed the one full year to simply imagine fermented process in the bottle, Wow! we tasted “Not Entirely Safe”, apple sider, Claire Langevin Vinyard, NY. I have to get one for next year. Thanks you, Nicole! この数年、一緒にNYC公立学校でインクルージョンプログラムを教えて来たニコルの家族が運営するヴィンヤードで、リンゴを昔からのやり方で絞り瓶詰め、1年発酵。1年、楽しみにリビングの棚で瓶の中での発酵発酵プロセスを想像していた!友人家族の庭から獲れ、アストリアの我が家で完成した!ああ、感動!
3歳位の時、近所の公園で知り合った近所の日本人幼馴染同士、大学生。高校時代から、私のパブリックアートを積極的に手伝ってくれる頼もしい青年達でも有る。母親同士、息子達の成長眩しい。この晩は、自分の子供の名前は何が良いかを真剣に話し合っている様だった。相手、いない様だけれど。
Son and dog
Experience "Dwelling - EGFR Mutation” in Williamsburg, Brooklyn.
I repurpose found objects such as used clothes, junk mail, discarded gum on the street as art supplies. Most recently, I have started to use the tools and processes that I have developed to consciously work with tumors since my diagnosis of stage 4 lung cancer. The tumors have become another art material in my life. I'm not fighting against the tumors; I am relating to them as a radical act in life of acceptance and creativity.
Installation "Dwelling - EGFR Mutation" is up as a part of "New Japanese Horizon" at Williamsburg Art and Historical Center 135 Broadway 2nd floor Stair Case, Brooklyn, NY 11211 till Dec.29, Fri - Sun 12-5pm
5 min. walk from Marcy Ave station/M-train. The entrance is on Bedford Ave.
Why don’t you come to Queens?
Internet Yami-Ichi New York 3.
UPDATED : NOV.30, Sat, at 47 WOOSTER ST, SOHO, 11-6, DUE TO WATER LEAK AT ORIGINAL SITE. FOR MORE DETAIL Inter net Yami-Ichi NY 3
My second participation for Internet Yam-Ichi NY. I am very excited, please come to see me and my POKETTO table with poketto books that you will be able to purchase as to go art. This Friday, Nov.29th, at NowHere 40 Wooster Street, SoHo, NY. 11-6pm.
Yin & Restorative Yoga
Great feeling after the first trial of Yin & Restrative yoga class. Thank you for referral, Nami.
Where did my hair go?
Not sure if this is side effect of 4 months of Tagrisso, anyway loosing hair. Comparing selfies of nowadays and a year ago, definitely it’s volume is different. I started to take biotin that my oncologist suggested me to take. Hope it works.
Pantsu Dansu
I would like to record here that Pantsu Dansu, 1min short video with 2 great dancers, mi&mei, with my tumor panties , unfortunately, could not get permission from the art organization. New upgraded video should come soon!